Monday, March 28, 2016

Caleb's 4 months post surgery follow up/update!

It's hard to believe that four months ago we were barely on the other side of Caleb's skull surgery.  We had just celebrated Thanksgiving and were trying to find a rhythm to life.  And I was most certainly starting to get a little stir crazy from being home all the time.

Four months ago, we watched as God's hand took what was suppose to be a long and rigid ride and made it a smooth sailing recovery. We had NO clue that Caleb would heal as well and as quickly as he did.  He had no clue, honestly, what to expect of him as he recovered.  {He was pretty delightful -- all things considered and took recovery like a champ!}
Right before surgery 11/19/2015 ~ Follow up appt 03/22/2016

God is faithful. God is kind. God answers prayers.
Never, ever stop believing that!
And Caleb will always be a brave soul and a little hero to me.

As a recap:  
*We were suppose to be in the hospital 3-4 days, it could have been up to 6. We were in the hospital for 48 hours.  Literally, we were driving away from the hospital 48 hours after I first stepped foot into the recovery room to see Caleb post surgery.

*Caleb's head and face didn't swell like it was suppose to.  He had minimal swelling the day after surgery and we were told it would get worse before it ever got better. We were prepared for Caleb's eyes to swell shut for a few days.  But that never happened. His swelling only went down and got better by two days post surgery!

*Caleb needed nothing more than tylenol to ease pain at home.  And that was only for five or six days.

*The area on the back of his head that retained all the fluid post surgery {which we affectionately called the "water bed"} was suppose to take around 8 weeks to reabsorb into his head.  We watched that little pocket of fluid dissolve completely by 11 days post surgery.

*Caleb's scar is so light! It's healing so beautifully.  Once his hair grows in a little more, you may never notice it.

L/R: immediately after surgery/one month before surgery/
both bottom pictures March 2016, 4 months post surgery

We saw Dr. Yaun last week and she was so delighted by Caleb's healing! She was also pretty delighted by Caleb himself :) Prior to this visit, she only knew Caleb from being 2-4 months old.  A seven month old is way more fun!

She commented on how well he is healing and that he seems to have NO developmental delays so far. She gave me some interesting stats on other types of craniosynostosis. I found out that, for whatever reason, saggital craniosynostosis rarely leads to delays. I was so glad to hear this and grateful that God was moving in Caleb's development.

Caleb's head does still have a little "point" to it in the back.  Obviously that wasn't the area of the skull she focused on removing, so there wasn't as much room for expansion back there. You would probably not notice, but I do.  I am aware that I will most likely always been more sensitive to Caleb's head shape and what it looks like than anyone else.

Dr. Yaun saw the "issue" I brought up and said we could do another surgery, but it would only be cosmetic.  That's clearly not something we want.  She also noted that as he grows, his head will likely expand a little more and it may become completely unnoticeable.  She also said his hair would hide more than just his scar :)

We go back in six months for another follow up and to make sure everything is healing and growing the correct way still.  It's so humbling to know this whole circumstance -- to know it in it's fullness and to know it as a memory. It's humbling and comforting to know grace so deeply and so abundantly.

God amazes me as He alone can heal and shape Caleb's head. He is worthy of all our praise.  His delicate handiwork on our sweet Caleb was no mistake and is not ever a defect in our eyes.  Caleb's craniosynostosis was a gift -- a hard and humbling and overwhelming and faith-filling gift.

Just a few recent pictures of Caleb so you can see how his head is changing and growing!

Wednesday, March 23, 2016

Weekly recap -- SPRING BREAK!

This past week was really nice. We didn't go anywhere and we didn't over expend ourselves.  With four kids, we have to choose our battles wisely.  Plus, lets be honest, there isn't really such a thing as "vacation" when you have small children.  It's basically doing life and getting out of your normal routine in a new place! Ha!

*We celebrated Benjamin's birthday by having our neighbors over for donuts and playing outside all morning.  We truly love our neighbors and they have all become dear friends in the small amount of time we have all lived near one another. Benjamin loved being made much of and especially every time we sang "Happy Birthday" to him! 

*Patrick took half of Monday off so we could all be together and have fun.  We went to Target to spend a gift card that B got and to Hideaway for dinner! We ended the night playing at the park and enjoying the beautiful day!

*Tuesday we went to Myriad Gardens with some friends.  It was so windy -- but the boys had fun playing and running around.

*Patrick took off Wednesday through Friday so we were looking forward to being all together.  Patrick and the boys got packed up to go camping.  They headed to Lake Arcadia around nap time and set up camp while the littles napped.  After Elise and Caleb woke up, we went out to have dinner with the boys and enjoy some family time.  Elise reached a max a little earlier than I thought she would, so we headed back home and went to bed! The boys had a great time and enjoyed camping -- again!

*Thursday and Friday we just laid low and did some things around the house. Patrick took Benjamin and Andrew to see Zooptopia and they ALL enjoyed it! We got McDonald's for lunch one day {which is super rare for us!} and headed to our favorite park to eat and play. And I think we went out to dinner one night. It's a blur. ;) But we enjoyed being together.

And all good things must come to an end... BUT Spring Break left me super excited for summer with my kiddos.  I can't wait to enjoy and do things and not be pregnant in that mix.  I really love that these are my people.  The Lord is so kind to know just what we all needed -- each other!

Saturday, March 19, 2016

Caleb in the grass...

Now that Caleb is a champ at sitting up, I took him outside to let him play int he grass.  It was SO windy and I'm a little surprised he didn't blow over - ha! But he enjoyed feeling the hard, brown grass. He tasted it and then happily played.  Our neighbors were sitting with me while I took pictures, so he was enjoying laughing and talking to them.

He is such a happy baby and we are so grateful.  He loves attention and snuggles. He isn't a great sleeper, but I don't mind too much.  He is such a joy to be around!! 

Friday, March 18, 2016

From Andrew's view...

I made muffins earlier this week.  Andrew found my camera on the island and took several pictures.  I generally don't mind if he or Benjamin hold the camera and take pictures and it is usually really great to see what they see.  Elise does this a lot with my phone while I'm nursing.  A child's point of view can be so remarkable!

Here are the pictures Andrew took while I was making muffins:

This is obviously not a view I have of myself often, but I appreciate having pictures of me doing every day things. // This is our real life!  I don't remember where Elise was.  The kitchen is messy.  The boys were getting ready to go camping. Benjamin was playing with a Hex Bug he got for his birthday. Caleb was contently watching and chatting in the jumbo. Remnants are all over the island from crafts and homework and snack time and dishes. // Maybe it won't mean anything to them now -- but what a sweet thing for my children to have when they are older.  Little every day moments with me in the picture instead of taking the picture!